James Sunderland visits the Bracknell headquarters of DEBRA, the national charity and patient support group for people living with Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’.

James met with CEO Tony Byrne and they discussed the excellent work DEBRA undertakes to help and support people living with this rare and very painful skin blistering condition.

James said:

“Epidermolysis Bullosa or EB is a debilitating skin disease. I will be hosting a reception in the House of Commons on 19th June to help raise £5 million for drug re-purposing. We can, and must make, a difference!” 

https://donate.giveasyoulive.com/campaign/a-life-free-of-pain